|
Organisation:
|
Barth Syndrome Foundation of Canada - Georgetown
|
|
|
Adresse postale:
|
162 Guelph St, Suite 115 L7G 4L2
Georgetown, ON
L7G 5X7
|
Carte
|
|
|
|
Notes sur l'accessibilité:
|
Mailing address
|
|
|
Description des services:
|
A volunteer-based, charitable organization that works to find treatments, causes and a cure for Barth syndrome (BTHS)
On-going programs include:
Science and Research
- participation in helping to fund approved Barth syndrome specific research in Canada and worldwide
Health Counselling
- providing affected individuals and their families with information and emotional support to improve quality of life, advance treatments, and find a cure for Barth syndrome
Health Information Activities
- awareness program for the medical community and the general public providing information about Barth syndrome, diagnostic alternatives, and treatments to help patients get care unique to Barth syndrome
|
|
|
Admissibilité / population desservie:
|
Individuals and families affected by Barth Syndrome and those supporting the foundation's aims
|